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August 20, 2007

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I am a patient with Complex Regional Pain Syndrome, which is incredibly
painful and can be very difficult to treat. One thing I think is missing in
the discussions of opioid prescribing is the measurable effect they can have on people's lives. I DID NOT want to start taking the opioids my doctor
prescribed. I like even less that we have to increase them every so often. But, without them, my body couldn't function. I couldn't go to school to be
a social worker. When opioids are used properly, they increase function. We
adjusted medications last week, and are making other changes which are
appropriate.

After a summer of not feeling hopeful (admittedly hard to quantify), being too nauseated to want to eat, not being able to go shopping except online
(which my mother admitted she missed doing with me) and poor sleep which
requires use of Ambien many nights due to the pain, function is improving. I wonder why the simple idea of properly used opioids increase function,
while psychological dependence or addiction decrease function which I first read in Scott Fishman's "The War on Pain" isn't discussed in the public?

Speaking from a patients' perspective, I'd say that publicizing that idea,
instead of the hysteria of the War on Drugs and "Ohmygosh pain killers are evil and all over being used too much" would be helpful.

In high school health classes, we learn that addiction is harmful. But I don't ever remember learning basic ways to care for pain, or even
understanding how some basic pain killers work. Maybe, if you went to the
school nurse, you got a bit of counseling on what to ask a doctor about
using ADvil, but I don't remember pain being discussed in school. I, and most of my peers (I'm a junior in a BSW program) have to learn about pain
ourselves. We're the future caregivers and leaders. I think some of the hysteria could be prevented if students actually learned about healthy attitudes toward pain.

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